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yogi
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Joined: Nov 2006 /
Posts: 8
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Post Date: 03 Mar 2009, 11:21:17
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My baby was born with lissencephaly and my beautiful son passed away 9 days later. No one explained the condition to me and I just feel lost and bewildered, please is there anyone in this group that I can talk to and learn more about my sons condition thank you.
Regards
Tina |
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yogi
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Joined: Nov 2006 /
Posts: 8
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Post Date: 04 Mar 2009, 12:47:22
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Firstly I want to say how sorry I am that your beautiful little boy p***ed away - life is so unfair.
Martin has found some links on the internet that may help explain what is lissencephaly. It appears to be rare disorders and you will probably find that very few people have heard of it.
Really hope someone can help yopu out.
Regards
Maeve
http://www.lissencephaly.org.uk/aboutliss/index.htm
http://www.answers.com/topic/lissencephalia |
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